Category Archives: daughter

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In these calendars sisters you can put sadaqah money they can give at taraweeh salah… money for you son or daughter, daily activities (i.e a small craft), hadith, soorah to memorize, chocolates… the possibilities are endless mashaAllah…. Im making the first calendar (the one that reads  Muhammad) for my children, one for each of my sons and one for my daughter inshaAllah…

 

 

 

 

 

 

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Filed under advent calendar, daughter, ramadhan, ramadhan2014 1434 a.h., son

My best advice for you my sister?…Teach them Al-Fatiah

Sisters, teach your daughters and your sons Soorah Al Fatiah before someone else does… they will use this soorah in every prayer 17 times a day, 119 times a week, 476 times a month and 5712 times a year…. and you will be rewarded for it, inshaAllah each and every time. This is one way to tip the scales on the day of judgment in your favour!

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Filed under advice to my sister for the sake of Allah swt, akhirah, daughter, qu'ran, Quran curriculum, salaah, son, soorah al fatiah

Apologies to my sisters….

Asalaamu alaikum everyone. My sincere apologies for the lack of posts. Things have been really busy medically wise with my daughter. We have had too many appointments mashaAllah… a vocal cord surgery coming up, and on this past ultrasound, the radiologist thinks her cancer may have returned so her file and report was sent to her oncologist in London Elhamdulillah. So I hope you all can forgive me for the lack of posts.

On another note, my oldest son as been really into the sciences this year so we are doing all the chemistry and solar experiments and models we can find… we just finished growing crystals and making a miniature solar car. With my daughter we have been working with her on her social studies… that being her MinSpeak speech device… my youngest, well, hes been coming out with new words everyday mashaAllah and hes learning ASL from his sister. Time goes by so fast subhanAllah.

images (4)Fatemah’s Minspeak is very similar to this one. Depending on the icon she hits on the screen, it opens up other menus and lets her create sentences. A preprogrammed female voice will say what is written on the screen either in English or Arabic. Total cost (not from our pocket Alhamdulillah, its covered through the Assisted Devices Program….) was $11,945.00. SubhanAllah.

6-In-1-Educational-Solar-Power-Assemble-Boat-Fan-Car-Dog-Plane-kit-Robot-DIY-Toy.jpg_350x350 This is the solar set I recently found for my son. I want to purchase a better one in the future though inshaAllah as this is not very sturdy etc. This is a once in a lifetime good science find from our local discount store. Total cost was $3.00.

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Filed under daughter, sciences, social awareness, son, Uncategorized

“Cherish your daughters…”

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“…and take care of the orphans and you will be next to me in jannah like this….”
—Rasoolullah alayi salaam
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Filed under daughter, orphans

She reached seven alhamdulillah…..!

Asalaamu alaikum,

So my dd’s therapists were working with her in occupational therapy to stack six cubes in a tower form and she constantly could not get past five alhamdulillah… well we have been working on it at home and alhamdulillah, she stacked seven at therapy today mashaAllah!

 

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She also is cutting better with these scissors alhamdulillah…. they “bouce back” open so its easier on her hand muscles…. (she uses the smaller pair)

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Filed under cubes, curriculum, cutting, daughter, occupational therapy

Alhamdulillah for new glasses….

So alhamdulillah, apparently the only way to get results is to nag people for what you want… new life lesson sisters. Im only kidding of course (well, halfway anyway) as after asking constantly for over a year, my daughters optometrist finally ordered Miraflex frames – of which my daughter will be having the pink ones inshaAllah (as pictured below). The reason for my enthusiasm is that Im never able to let her wear them as much as she should because she breaks the frames but these new Miraflex are silicone type plastic which she cannot break and they have an elastic in the back to hold them on her head. InshaAllah she will get good use out of these ones.

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Also, on another bright note, again within my daughter’s circle, her AAC therapist is working to get her this device (or similar). InshaAllah it comes before school starts. There is a 1 and 1/2 year waiting list but she jumped to the top once she was accepted to JMCC – again, alhamdulillah for this blessing. Now she only has to wait three months! It is touch screen, with different menus on the main page for different situations and she can tell us anything now, from what she needs, to how beautiful the sunset is – MashaAllah…….

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Filed under aac (augmentive and alternative communication), daughter, optometrist, visually impaired

Fatemah and the ipad…

Salaam alaikum sisters,
The title sounds like a fairy tale story doesn’t it? To explain further, my daughter loves the ipad. She always uses her Baba’s ipad from work and now a brother and close friend of my husband is sending her his ipad to have. This is exciting not only because she loves touch screens and games but because we can now use the ipad for something more.. an aac (augmentive and alternative communication) device. We purchase and download the Speak for Yourself app for $299 and it turns the tablet into a $7000 aac device. Sounds too good to be true? It may just be. Apparently Pentke, the major producer of these aac devices my daughter needs, is now suing the makers of the aac App. Now I am no longer sure if we will be able to get it for her…  I can understand their concern – the cost of the app and a tablet is a whole lot cheaper than their own $7000 device but when patent litigation has the potential to affect the vulnerable, the debate is no longer a laughing matter. It would be so easy for their company to make an app like this, although with  each download, they will be making hundreds compared to thousands… the only issue I have is that when another mother contacted them, they gave a negative response to the question of whether making an app was in the future plans. Shouldn’t my daughter be able to tell me she wants to go to ballet class, or with her father to the mosque, or that the dress her khalah in Yemen made her for Eid with the crystals on it is her favorite? She has so much to say, so much, I know she does, and it hurts me so bad that she cannot express her wants and needs, her likes and dislikes. InshaAllah things go as we hope, and she gets to use this program.

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Filed under aac (augmentive and alternative communication), communication, daughter, tablet/ipad

For my daughter…

Asalaamu alaikum sisters,

Okay I am soo excited I cant sit still subhanAllah. Here is my news… even though I take my daughter to speech therapy, she is still non-verbal because of her trach and although she knows some signs, it is frustrating to understand what she wants at times alhamdulillah. This is why I have come up with the idea to make her a PECS board/album. For those who do not know what that is, it is a “picture exchange system“. These run upwards of $150 in the assisted needs stores. Im making her one for $15. What you do is get a large bristol board or photo album, you print out pictures of everyday activities (i.e bottle of formula, potty, book, outdoors, blowing bubbles, nap, etc) and small pictures of family members. Then you laminate them all. You then cut small strips of sticky back velcro. Stick them to the back of the pictures. You then cut and stick long velcro strips vertically on either the bristol board or pages of photo album, (which ever one you are using) and then place the little laminated cards on the vertical lines. You then teach your daughter or son to get the picture they need at the time and bring it to you to let you know what they want. You can then sign it, if you want to encourage signing as well, but it is just added to your everyday life… think of it as an assistant inshaAllah! As an alternative you can also get those voice recorded photo albums… they tend to run around $30. Here are a couple different ways you can make them… (keep in mind that if you use soft material you can roll it up and take it with you wherever you go… the same with the ones on the rings, just throw them in your purse or daughter’s/son’s bag…

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Filed under assistive devices for my daughter, daughter, non-verbal

to you, my sisters who have sons or daughters with disabilities

A Trip To Yemen………………………..edited by myself (original by Emily Perl Kingley)

Asalaamu alaikum sisters. I am often asked to describe the experience of raising a daughter with a disability – to try to help others who have not shared that unique experience to understand it, to imagine how it would feel inshaAllah. It’s like this…
When you’re going to have a baby, it’s like planning a fabulous vacation trip to Saudi. You buy a bunch of guide books and make your wonderful plans… Mecca, the sea front of Jeddah, the huge masjids. You may learn some handy phrases in Saudi dialect. It’s all very exciting. After several months of eager anticipation, the day finally arrives. You pack your bags and off you go.
Several hours later, the plane lands. The stewardess comes in and says, “Welcome to Yemen!” “Yemen?” you say. “What do you mean, Yemen? I signed up for Saudi. I’m supposed to be in Saudi. All my life I’ve dreamed of going to Saudi.” But there’s been a change in the flight plan. They’ve landed in Yemen and there you must stay.
The important thing is that they haven’t taken you to a horrible, disgusting, filthy place full of fitna, arrogance, and unfamiliarity. It’s just a different place.
So, you must go out and buy new books. And you must learn Yemeni arabic. And you will meet a whole new group of people you would never have met. It’s just a different place. It’s slower paced than Saudi, less flashy than Saudi.
But after you’ve been there for a while and you catch your breath, you look around. You begin to notice that Yemen has mountains. Yemen has the sea. And Yemen even has purple chickens (yes – they have coloured baby chickens in the souk in old sanaa, trust me on this inshaAllah). But everyone you know is busy coming and going from Saudi, and they’re all bragging about what a wonderful time they had there. And for the rest of your life you will say, “Yes, that’s where I was supposed to go. That’s what I had planned.” And the pain of that experience will never, ever go away. The loss of that dream is a very significant loss, and yes, there are nights you cry and some days you feel overwhelmed.
But if you spend your life mourning the fact that you didn’t get to Saudi, you may never be free to enjoy the very special, the very lovely things about Yemen. So you stand back, find strength to increase your eman, and say “Alhamdulillah. I am in Yemen.”

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Filed under beckwith-weidemann syndrome, daughter, health, reflection, religion, spastic diplegia cerebral palsy

an update on my daughter

My daughter alhamdulillah is doing well. She doesnt need to see the neurologist for another year and she has been using a walker which they will order for her soon inshaAllah (rifton pacer gait trainer). She can anticipate when someone will throw something to her for her to catch, she will just not give it back mashaAllah! Soon she will get her trach out inshaAllah, and then we will work on speech more than anything. She is also latching on to a cup to drink from and taking formula by mouth alhamdulillah. All in all she is doing so well alhamdulillah. Soon we will start homeschooling. JazakAllah khair for your continued duas for her… here is a photo of her rifton gait trainer:

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Filed under daughter, dua'as